Blogroll

HealthDataRights.org is about the power of collective wisdom. This blogroll represents the people who endorse the Declaration of Health Data Rights, and want their voices to be heard on the topic. Let's hear what you have to say.

  1. Declaration of Health Data Rights

    Adam Bosworth's Weblog posted by Adam Bosworth
    June 22, 2009

    It's about time we stood up and supported this most basic of rights.

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  2. A Declaration of Health Data Rights: Aux Barricades!

    Web 2.0h. . .Really? posted by Craig Stoltz
    June 22, 2009

    With federal money pouring into health information technology, some are trying to ensure patients control their own data.

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  3. Silber's Blog supports the Declaration of Health Data Rights

    Silber's Blog on eHealth posted by Denise Silber
    June 22, 2009

    Reporting on the introduction of the declaration of Health Data Rights.

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  4. Your Health Information - But Not Your Right to See?

    Every Patient's Advocate posted by Trisha Torrey
    June 22, 2009

    As we advance toward electronic medical records, some stakeholders would prevent patients from access to their entire health ...

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  5. Your Health Data Rights

    Open Health Project posted by Cindy Throop
    June 22, 2009

    This post is dedicated to Fred Holliday.

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  6. Our Health Data Rights

    Conversations with Dr. Greene posted by Alan Greene, MD
    June 22, 2009

    When it comes to health, having our health data is like having keys to the car: we move from being passive passengers to bein...

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  7. Endorse the right to access your health data

    Coco Kraft and the Village Elders posted by Christine Kraft
    June 22, 2009

    No patient/caregiver/provider can do his or her job without access to data. That's why I support "A Declaration of Health Dat...

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  8. You Have the Right to Your Health Data

    World of Psychology posted by John M. Grohol, Psy.D.
    June 22, 2009

    Psych Central supports a person's right to their health data, without limitation or barriers.

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  9. Another milestone on the journey forward…

    Neupert on Health posted by Peter Neupert
    June 22, 2009

    Over three years ago, we started on a journey -- to empower consumers with tools to help make better health decisions and dri...

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  10. In Iran and In The US Healthcare System Citizens Access To Computable Data Frees Everything!

    e-Patients.net posted by Gilles Frydman
    June 22, 2009

    Citizens have the rights to their health data. Healthcare reform depends on it!

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  11. Free Your Healthcare Data!

    NerdcoreLearning.com posted by Francis Kong
    June 22, 2009

    Our humble proclamation of the oncoming Revolución.

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  12. Patients like me declare our health data rights

    The Value of Openess: The PatientsLikeMe Blog posted by James Heywood
    June 22, 2009

    This Declaration articulates these inalienable rights, as it provides a straightforward definition of health data rights to e...

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  13. Grassroots Upheaval: A Declaration of Patients’ Rights to Health Data

    DiabetesMine.com posted by Amy Tenderich
    June 22, 2009

    Announcement of this new Patients' Rights manifesto -- not a revolt against HIPAA per se, but a cry for every individual’s ri...

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  14. It’s Your Data … Shouldn’t You Have Access To It?

    The Spittoon posted by Linda Avey
    June 22, 2009

    At 23andMe, we believe people can play a more active role and contribute more directly to studies of most interest to them an...

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  15. Google endorses Declaration of Health Data Rights

    Google Public Policy Blog posted by Missy Krasner & Roni Zeiger
    June 22, 2009

    As part of this effort, we're endorsing an industry-wide Declaration of Health Data Rights. Unveiled today at HealthDataRight...

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  16. Declaration of Health Data Rights

    The New Life of e-Patient Dave posted by e-Patient Dave
    June 22, 2009

    Today's current reality an assumption, unspoken or not, that you have no real right to your data, and you're putting them out...

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  17. A Manifesto on Health Data Rights

    O'Reilly Radar posted by Tim O'Reilly
    June 22, 2009

    As a medical patient, I've always assumed that my medical records were something that I had a right to - after all, they are ...

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  18. A Declaration of Health Data Rights

    Worldchanging posted by Jon Lebkowsky
    June 22, 2009

    About the Declaration of Health Data Rights, and why it's important.

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  19. You Own Your Health Data

    The Quantified Self posted by Kevin Kelly
    June 22, 2009

    An explicit declaration that everyone should be legally ensured of that access is a good thing. It has no legal binding, but ...

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  20. Declaration of Health Data Rights

    Brian Ahier - Healthcare IT posted by Brian Ahier
    June 22, 2009

    Patient's must control their own health data. Please endorse the Declaration of Health Data Rights

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  21. I Will License or Lease My Health Information To Providers

    A HealthTweep Pulse Check posted by Gregg Masters
    March 26, 2009

    It's my 'intellectual property' (IP); i own it and will sub-license it's use by delivery and financing systems.

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